Betty.
Meet Betty. This is where our story begins.
Our daughter arrived early. A newborn screen brought new questions. We’re making a place to learn and find other families.
Read the storyA family journal. A growing community.
Finding our way.
Finding each other.
Life with questions about congenital adrenal hyperplasia can feel overwhelming. We’re sharing Betty’s story—and making a little room for yours.
For families navigating CAH, from the first question onward.
EST. 2026
ONE DAY AT A TIMENewly diagnosed, waiting for answers, or years into the journey.
You belong here.
THE JOURNAL
Small moments.
Things we’re learning.
Betty.
UNDERSTANDING
A positive newborn screen: what happens next?
What a CAH screening result can tell you, why follow-up matters, and how to keep the details straight.
Read the storyTOGETHER
Questions to bring to the endocrinologist
A short conversation guide for understanding the diagnosis, treatment plan, and everyday care.
Read the storyA PLACE TO LAND
Some things are easier
with people who get it.
Ask a question. Share a small win. Talk about the everyday things that don’t fit into a doctor’s appointment.
Come say helloTHERE’S ROOM TO TALK ABOUT…
Those first few weeksThe everyday routinesQuestions & little victoriesA new community, built one conversation at a time.
A GOOD PLACE TO START
Understanding CAH,
one question at a time.
A few reliable starting points from specialists and established organizations. Clear information to bring to your own care team.
Find trusted resources